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Staffordshire man to turn passion for music into support for cystic fibrosis charity

Marc Cotterill with Matt Bishop from Inspire Music

A Cheadle man says that after benefiting from life changing drugs, he wants to help others living with cystic fibrosis.

37-year-old Marc Cotterill has welcomed the news that patients will now have full access to Orkambi, Symkevi and Kalydeco, following an agreement between NHS England and Vertex Pharmaceuticals.

It means around 5,000 people may now take up these treatments.

He said: "The reactions online have been incredible to see, families just jumping for joy and really getting exciting.

"If you think about young families who had no idea what CF is, and then they're faced with this battle. 

"Now they have really got something to feel hopeful for."

Marc was put onto new medications that tackle the root cause to improve lung function, after seeing his deteriorate to 40% of what is expected.

He says that while they have made a big difference, he is still having to have hours of treatment a week.

At the same time he has seen family and friends take on marathons and fundraisers in support of cystic fibrosis charities.

He says it inspired him to do something, which would incorporate his passion for music.

Teaming up with friends at Stone based Inspire Music, he's created a charity single 'Warrior'. 

Marc said: "I can't climb mountains or run marathons, but I think I can write a decent pop song.

"We sat down and Kat the singer came along to a writing session and had these lyrics. She started to sing some melodies, and the first line was 'I'm a warrior', and I thought 'we can do something with that'".

As well as highlighting the fight for treatment for people living with cystic fibrosis, the song will raise funds for the CF Holiday charity.

Marc had wanted to find a small organisation, rather than donate to a big charity.

But it wasn't until he spoke to the director that he realised he already had a connection with them.

He said: "It was only when chatting to Laurie about my own situation I sat there and thought years ago I went on a trip funded by a charity.

"It was a three week wild west adventure across America.

"It was incredible, and lo and behold it was the same charity!"

 

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